The legal and medical situation of ME (Myalgic
Encephalomyelitis) and CFS (Chronic Fatigue Syndrome) patients
Myalgic Encephalomyelitis (ME) was accepted by the WHO
as a neurological disease in 1969.
some countries ME
is referred to as Chronic Fatigue Syndrome (CFS). In
1993 CFS was added as an addendum to ICD-10 but the
“fatigue”-based definition of CFS still causes confusion and
problems for patients, as was stated by Mrs. Androulla Vassiliou,
former European Health Commissioner.
can occur in outbreaks: one was described for the first time in
Experts have placed ME in the same category as cancer and late stage
AIDS regarding quality of life and suffering.
therefore request the following:
to respect the WHO ICD-10-Code G93.3 for ME as a neurological
disease and ensure that the Member States implement this in their
Health Care System;
to respect the rights of ME patients – including children - in all
to endorse as diagnostic criteria for ME the Canadian Consensus
Criteria and the developing International Consensus Criteria;
to encourage the development of biomedical research.
An estimated 1.200.000 very sick ME patients in
Europe are waiting for parliament to recognise the WHO
G93.3 Postviral fatigue syndrome
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Peterson DL, Klimas NG, Lerner AM, Bested AC, Flor-Henry
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Carruthers BM, van de Sande MI, De Meirleir
KL, Klimas NG, Broderick G, Mitchell T et al. Myalgic
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Kumasaka, Harnoor Singh, Betsy Keller, Daniel L. Peterson, Jose
Montoya and Christopher R. Snell: A diagnostic test for the
identification of metabolic dysfunction.
Conference abstract 9th IACFS/ME clinical and research conference,
Reno, March 7, 2009.
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and Bell, D. E. (2012), Understanding Long-Term Outcomes of Chronic
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Twisk, F.N., Maes, M., 2009. A review on
cognitive behavioral therapy (CBT) and graded exercise therapy (GET)
in myalgic encephalomyelitis (ME)/ chronic fatigue syndrome (CFS):
CBT/GET is not only ineffective and not evidence-based, but also
potentially harmful for many patients with ME/CFS. Neuro
Endocrinology Letters 30 (3), 284–299.
KCE report: Evaluation of CBT/GET
Fluge Ř, Bruland O, Risa K, Storstein
A, Kristoffersen EK, et al. (2011) Benefit from B-Lymphocyte
Depletion Using the Anti-CD20 Antibody Rituximab in Chronic Fatigue
Syndrome. A Double-Blind and Placebo-Controlled Study. PLoS
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Maes M, Twisk FN: Chronic fatigue
syndrome: Harvey and Wessely's (bio)psychosocial model versus a
bio(psychosocial) model based on inflammatory and oxidative and
nitrosative stress pathways. BMC Med 8:35.
Broderick G, Fuite J, Kreitz A, Vernon SD, Klimas N,
Fletcher MA. A formal analysis of cytokine networks in chronic
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Komaroff AL, Cho TA: Role of infection
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Abnormal impedance cardiography predicts symptom severity in chronic
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of orthostatic hypotension, orthostatic tachycardia and subnormal
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Seven genomic subtypes of chronic fatigue syndrome/myalgic
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Paradigm for Chronic Fatigue Syndrome, Multiple Chemical
Sensitivity, Fibromyalgia, Post-Traumatic Stress Disorder, Gulf War
Syndrome and Others.
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Meeus M, Nijs J, McGregor N, Meeusen R, De Schutter
G, Truijen S, Frémont M, Van Hoof E, De Meirleir K.:
Unravelling intracellular immune dysfunctions in chronic fatigue
syndrome: interactions between protein kinase R activity, RNase L
cleavage and elastase activity, and their clinical relevance.
2008 Jan-Feb;22(1):115-21.PMID:18396793 [PubMed - indexed for
an objective view of the establishment intrigue surrounding ME
Magical Medicine: How to Make a Disease Disappear
by Professor Malcolm Hooper [click
Professor Hooper has made a formal complaint to the Minister of
State responsible for the Medical Research Council.