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Italy AMCFS
 
Name Associazione Malati di CFS AMCFS Italy
President Roberta Beretta Ardino
Web Address http://www.associazionecfs.it/
Contact amcfs.onlus@gmail.com

The Associazione Malati di CFS includes both patients as well as doctors and researchers in its membership. The objectives are to restore dignity to the lives of those suffering from this severe disease, completely neglected by the establishment institutions and largely unknown, except by hearsay, by the medical establishment. The organisation believes that the doctor should provide the first source of correct and effective information for a patient with ME - who is forced to manage a situation of severe physical pain, having to completely rearrange their pace of life and work, and to enter into with this complex changing world.

Our first objective is to raise awareness of the illness to medical, public and social institutionsin order that the processes of diagnosis, the recognition of disability at work and psychological support, not to mention the most important aspect, namely the implementation of therapeutic attempts reasoned, should be streamlined and made more effective and immediate.

AMCFS also focuses on medical research in Italy and contribute to the understanding and future treatment, physiopathogenetic mechanisms underlying the syndrome. We have already proved a valuable support for scientific work, held in the laboratory of Immunogenetics, University of Pavia, where also a "biological bank" (i.e. material from blood samples from dozens of patients that can be used for scientific research) was set up.
 

In the window below is the actual web site of AMCFS.

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