- Founded 2008
- Member organisations in 20 countries
- Member of EPF, EFNA and EDF
- WHO Europe accredited Non-State Actor
A first for ME research in Europe
DISCOVER-ME is the first major EU Horizon-funded biomedical research programme dedicated to ME
DISCOVER-ME partners at the kick-off meeting in Valencia
EU Horizon Europe project
DISCOVER-ME
DISCOVER-ME is a four-year research project (2026 to 2030), coordinated by the Medical University of Vienna, to improve the diagnosis, prognosis and treatment of ME. It brings together researchers, clinicians and patients across Europe, with harmonised assessment of 2,000 patients and analysis of more than 900 biobank samples.
The team recently met in Valencia for the kick-off meeting.
- EMEA is the partner responsible for patient and public involvement, through its Patient Advisory Group drawn from EMEA member organisations
- EMEA also leads the project’s communication and dissemination
Funded by the European Union
About EMEA
The European ME Alliance (EMEA) is a grouping of European organisations dedicated to supporting patients suffering from Myalgic Encephalomyelitis (ME, sometimes referred to as ME/CFS).
Founded in 2008 by national patient organisations and charities across Europe, the alliance is committed to improving the lives of those affected by ME. This debilitating neurological illness is classified by the World Health Organisation under ICD-11 Code: 8E49.
Our vision is to ensure that all patients have access to accurate diagnosis, compassionate care, and effective treatment, recognising ME as a serious, chronic illness.
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Sahana South Asia
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Latest News
Recent work by the European ME Alliance and our partners.
October 2026
EMEA statements to WHO Europe RC76
Six statements to the WHO Regional Committee for Europe in Copenhagen, bringing the needs of people with ME into agenda items on health, ageing, AI, NCDs and disability.
Read more →
October 2026
Environmental Accessibility position statement
EMEA calls for environmental accessibility to be recognised as a shared disability rights principle. Organisations are invited to endorse the statement.
Read more →
Q4 2025
EMEA submission to the European Commission
EMEA’s submission to the European Commission, raising the needs of people with ME at EU level.
Read more →WHO-Europe Support for ME in International ME Conference Week
Director of WHO Europe Dr Hans Kluge Opens the #IIMEC18 International ME Conference in UK and is unequivocal about the nature of the disease.
