European ME Alliance Sweden member RME Seminar on Children and Young People with ME/CFS
On November 12, 2014 EMEA, Sweden RME, organised a seminar on children and young people with ME / CFS in Stockholm.
In Sweden, an estimated 40 000 people suffer from the disease, which is often difficult
and underdiagnosed and disabling.
These include children and young people who are hit particularly hard because the knowledge of the disease is low.
The seminar focused on children with ME / CFS and was primarily aimed at
professionals in the health care and schools.
The presenters were -
Orthostatic intolerance and pediatric ME / CFS
Dr. Peter C. Rowe, Johns Hopkins Children's Center, United States
Pediatric ME / CFS
Diagnosis and Management
Dr. Nigel Speight, The University Hospital of North Durham, UK.
[Dr.Speight will also cover the issue of "child abuse" by Medical Professionals and Other Authorities due to misdiagnosis in cases of ME / CFS[
The Immune / virus / endocrine interface into ME / CFS
Dr. Amolak S Bansal, Dept. of Immunology, St. Helier Hospital, Carshalton, Surrey. UK.
Living with ME / CFS as a child
Nathalie Gillberg, 14 and afflicted, and Camilla Gillberg, parent says.
A report on the seminar was made by Michel Silvestri - click here
More details of the seminar, including films of the seminar presentations, are available
from the RME site - click here