EMEA - BELGIUM
Organisations representing European ME Alliance in Belgium
Belgium ME/CFS Association
The ME Association was established as a non-profit organization in 1989 with the aim of raising awareness of ME / CFS (Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome) and raising funds to support scientific research in Belgium.
The Association has the following objectives:
Increase awareness of the disease
Through social media such as Twitter, Facebook and LinkedIn, the ME Association distributes the most recent information about ME / CFS. Local discussion groups are organized and lectures are given by professors, doctors, experiential experts, etc. (see section 'Activity calendar)
The ME Association is supported by volunteers and ME patients. The head office in Nieuwrode takes on a leading and coordinated task and bundles its activities in the quarterly magazine 'MEdedeling'. She also staffs the secretariat two afternoons a week (Tuesday and Thursday from 2 p.m. to 5 p.m.) to look after patients and other interested parties with questions about ME / CFS and to familiarize them with any procedures. Via the ME Helpline you can contact countless volunteers by phone when you need a listening ear.
Distributing information to patients, doctors, schools, mutual insurance companies, ...
But also through patient and doctor information folders, leaflets, brochures ... the ME-Association tries to disseminate information and gives presentations to schools, mutualities, home care ...
Sponsors of scientific research
The ME Association only functions as a 'channel' in sponsoring scientific research.
This means that it does not finance scientific research (through its own activities), but if a sponsor wants to donate a certain amount to a specific research team or teams, it will transfer this in full.
Strive for recognition